Patient Confidentiality and Data Sharing

Data sharing

GP practices are now able to share some information from your medical records with other health services that provide you with care. This information is limited and is called a ‘shared record’.
In Cumbria there are two types of ‘shared records’, a local one within the Cumbria area only and a national one. In addition to the shared record facility, from October 2013 the Health and Social Care Information Centre will be extracting data from medical records as part of the Care.Data Programme.
A brief description is given below for each of the methods for data sharing / extraction.

Local Shared Record
If you give your permission, healthcare professionals you visit in the North Cumbria area can now view your shared record or a relevant section of it via their computer system. This is done through a secure NHS network, not the internet.
Your shared record contains a summary of your most up-to-date, relevant health information which includes:
• Your recent diagnosis and test results;
• What allergies you have;
• What medications and treatment you currently receive

By allowing access to your shared record, you can ensure that healthcare professionals treating you have the most up-to-date and accurate information about your overall health and current treatments.
This will allow healthcare staff to give you better advice and provide safer and more effective care.
It will help to ensure that mistakes are avoided and can also reduce the need for you to give different health services the same information repeatedly.
Each time a healthcare professional you visit wants to view your shared record, you will be asked directly for your permission.
If you wish to opt out of this service please let your GP know.

The Summary Care Record
The Summary Care Record is available all over the country to enable healthcare professionals to gain access to your records to help provide patients with better care and service.
The records are very similar to the local shared records as described above. The information on your shared care record is:
• Acute prescriptions in the last 6 months
• Repeat medications
• Discontinued repeat medications – stopped within the last 6 months
• Allergies and adverse reactions
If you wish to opt out of this service please let your GP know and you will need to complete an opt-out form.

Care Data Programme
Confidential information from your medical records can be used by the NHS to improve the services offered so we can provide the best possible care for everyone.
This information along with your postcode and NHS number but not your name, is sent to a secure system where it can be linked with other health information. This allows those planning NHS services or carrying out medical research to use information from different parts of the NHS in a way which does not identify you. If you are happy for your information to be used in this way you do not have to do anything.
If you have any concerns or wish to prevent this from happening, please let us know.

For further information:

• Ask for a leaflet in the surgery